THE BURDEN OF CAREGIVING AND ITS IMPACT ON THE QUALITY OF LIFE OF INFORMAL CAREGIVERS OF STROKE SURVIVORS Authors: Gohil JN
ABSTRACT
BACKGROUND
Stroke is a leading cause of long-term disability, with survivors often relying on informal
caregivers for both physical and emotional support. However, caregiving can impose significant
strain on caregivers, potentially affecting their quality of life. It is crucial to examine the burden
on informal caregivers and its impact on their well-being.
OBJECTIVE
The aim of this study was to evaluate the burden experienced by informal caregivers of stroke
survivors and examine the relationship between caregiving burden and the caregivers’ quality of
life.
MATERIALS AND METHODS
A convenience sampling method was used to select informal caregivers who worked over 7 hours
per day and cared for stroke survivors for 3-12 months. The Modified Caregiver Strain Index
(MCSI) was used to measure caregiver burden, while the WHOQOL-BREF assessed the
caregivers' quality of life.
RESULTS
The sample comprised 57.69% females and 42.31% males, with 75% of participants aged between
30 and 45 years. Key findings included 42.02% of caregivers consistently experiencing challengessuch as sleep disturbances, physical strain, and emotional changes. Meanwhile, 51.92% encounter
these issues occasionally, while 6.05% do not face such difficulties. A Pearson correlation test
between MCSI and WHOQOL-BREF showed a very weak positive correlation (r = 0.121), which
was not statistically significant (p = 0.392).
CONCLUSION
Caregivers experienced significant strain across physical, emotional, and financial domains.
However, the connection between caregiver burden and quality of life was weak and not
statistically significant, indicating no substantial relationship.
Keywords: Stroke survivor, Informal caregivers, Burden, and Quality of life Publication date: 01/04/2026 https://www.ijbpas.com/pdf/2026/April/MS_IJBPAS_2026_10112.pdfDownload PDFhttps://doi.org/10.31032/IJBPAS/2026/15.4.10112